The third 5K run/walk to benefit the Brain Tumor Society is
scheduled for Sunday, April 16, 2000. The way this came together
is a tale of volunteerism, dedication, imagination and sheer
energy by a small group tied together by a single goal--the
elimination of dreaded brain tumors. What is remarkable about
this is that it is not remarkable at all. "Racing for cures" has become a commonplace technique for
attention getting and fund raising. The goal is to support
research and to discover cures. But an underlying motive is to
increase public awareness of a particular infirmity or disease
and achieve status as a "politically correct" thing for Congress
to support in making appropriations to the National Institutes
of Health and other national medical and related programs. This,
unfortunately, is a competitive game and takes people power.
Americans laud volunteerism. Here it is at its worst and best.
The attack on disease is largely the task of volunteers, most of
whom have an illness or are involved with someone who does.
There is something bizarre about expecting the survivors and
victims of disaster to gather the energy and strength to fight
the ravages they have suffered so that others may be spared.
The first "There is Hope" 5K Run/Walk to benefit The Brain Tumor
Society took place in April 1998 at West Potomac Park in
Washington, DC. Through the efforts of a planning group of less
than a dozen people and the professional assistance of Capital
Running Company, more than 1000 runners signed up and net
proceeds of $65,000 were donated to The Brain Tumor Society for
medical research and victim services. The second annual race in
April 1999 drew about 1800 runners and raised more than
$120,000. We are now gearing up for the third race. Death has
claimed some original planners and others have joined the
effort.
What does it take to successfully launch such an enterprise?
1. People. The parents of a teen-age brain tumor victim
lead our
parent organization, The Brain Tumor Society. They are trying to
fill the void of research dollars which can no longer save their
son. One of their son's friends, now a professional financial
planner, is a leader of our Washington area group. The co-chair
is a young mother, whose sister conceived the idea of the run,
attended the first race in a wheel chair, and succumbed to her
brain tumor shortly thereafter. A painting contractor and his
wife lost a daughter after a widespread but fruitless search for
a cure and now devote all of their spare time to our group and
to assisting others similarly situated. Brain tumor survivors
among us inspire our work. Others serve in memory of children,
parents, and siblings. We are a band of strangers brought
together by sorrow and fear and a feeling of deep obligation to
those facing this mysterious and dread disease.
Our meetings are spent directly on planning for the run,
developing brochures, planning publicity, securing funds and
gifts, organizing the volunteers to work at the run, and making
sure of enough water and food (and t-shirts) for race
participants. We are too small a group to organize a
bureaucracy. Each person does what he or she feels competent to
do. Capital Running Company advises us and assures the
availability of the race course, port-a-johns, first aid
services, traffic control and the endless details of such an
event.
At the race itself, we depend upon the support of scores of
friends, neighbors, and co-workers to serve as volunteers to
register the runners, hand out water, set up food, and provide
information about brain tumors. Delta Tau Delta, a national
fraternity chapter at American University, has adopted The Brain
Tumor Society as a charitable activity and provides the services
of about 40 fraternity brothers on race day.
2. Sponsors. Such an endeavor needs the generous support
of
major sponsors from the business world. Fees paid by runners to
enter the race cover only the cost of the race itself, including
t-shirts. The more runners you can attract, the more likely you
are to attract sponsors. The major benefactor for the Brain
Tumor 5K has been Duron Paints & Wall Coverings. This year, the
race has secured two new title sponsors, Cassidy & Pinkard and
SAIC. Other sponsors include Ben and Jerry's, 3M, and several
other well-known enterprises, foundations, and generous
individuals. We also depend upon gifts and coupons from generous
merchants to be awarded at the race. These vary from expensive
vacation opportunities, choice tickets to athletic events, or a
dinner for two at a local restaurant.
3. Celebrities. We are all aware of well-known
entertainers,
athletes and political leaders who "humanize" the reality of an
illness by public acknowledgement. In our case, the tragic death
of three-year-old Andrew Rypien from a brain tumor in August
1998 brought us the vigorous support of Mark Rypien, the famed
Super Bowl quarterback of the Washington Redskins, and his wife
Annette. Mark Rypien co-chaired our 1999 race along with
Congressman James P. Moran of Virginia, whose daughter suffers
from brain tumors.
The Rypiens made several radio and television appearances on
behalf of the run and drew other football stars, such as Charles
Mann and Brian Mitchell, to meet with participants on the day of
the race. Numerous members of Congress, including Speaker of the
House Dennis Hastert, endorsed our efforts. Rypien had been a
member of Delta Tau Delta when he was in college, which led to
the support of the American University chapter.
4. Faith, Hope, and Charity. Brain tumors strike more
than
100,000 Americans annually. The cure rate is low and the
incidence is on the rise. Brain tumors are the second leading
cause of cancer death in children and young adults and
increasing among the elderly. There are numerous worthwhile
needs in society but your participation or sponsorship of the
Cassidy & Pinkard/SAIC Brain Tumor 5K can help the Brain Tumor
Society sustain its work to support research and needed victim
and family services.
The "There Is Hope" Cassidy & Pinkard/SAIC Brain Tumor 5K Run
and Walk is scheduled for Sunday, April 21, 2002 at Frredom
Plaza, beginning at 9:30 A.M. A kid's fun run will follow. For
information call 301-871-0400. See the race Web site and
register online at www.runwashington.com.