The aHUS Foundation is a nonprofit organization dedicated to supporting people affected by atypical hemolytic uremic syndrome (aHUS) and their families. Founded by caregivers and patients, the Foundation provides up-to-date information, educational resources, and a supportive community to help individuals and loved ones navigate the challenges of this ultra-rare disease. It fosters connections among patients, caregivers, researchers, and healthcare professionals to raise awareness, share experiences, and improve quality of life through conferences, outreach, and advocacy.
