When Amanda Garzon was making preparations to host the third annual Hydrocephalus Association 5k Run/Walk on September 29, she knew that many of the runners participating would not have a first- hand knowledge, or even an awareness of the disease. Many would be standing on the starting line on the mild Saturday morning in late September mainly because they were searching for a local, flat, and fast 5k race to include in their competition schedule. At the same time, however, Garzon, the Co-Chair of the race and the Director of Media and Marketing for the Hydrocephalus Association (HA), hoped that by drawing local attention to the HA cause, she could raise awareness and build support for finding treatment and a cure for the disease.
Garzon knows all too well about the impact hydrocephalus can have on lives. Her 13-year old daughter, Gabriela, has suffered from the disease since she was a baby, and has had 15 brain surgeries. Hydrocephalus, a condition characterized by the buildup of fluid in the ventricles of the brain, afflicts over one million Americans. Anyone can get hydrocephalus, at any age, and there is no cure. The primary treatment is the implantation of a shunt in the brain, a surgery with a high failure rate requiring repeated revisions.